The BOS Foundation hosted the first annual BOS Family Meet-Up in August 2016! Fourteen of the children and adults with BOS, their immediate family, and BOS medical advisors attended this casual event in Philadelphia, PA. 

This event celebrated our BOS children and angels and their families! This opportunity allowed families living with this extremely rare syndrome to meet for the first time! This casual meet-up provided a safe place for the exchange of information and ideas for the best care of children and adults with BOS. Every family received a BOS Meet-Up goody bag filled with goodies and information about BOS and the BOS Foundation. 

The BOS Foundation is well on its way in planning next year’s Meet-Up Event, which will be held in Philadelphia, PA in July 2017.  Please email for more information.