BOS Annual Meet-Ups
The 2018 Annual BOS Meet-Up is scheduled for the California! More information will be coming at the beginning of 2018. Contact firstname.lastname@example.org if you would like to help or have questions.
Join us for the third annual Bohring-Opitz Syndrome Family Meet-Up!
The BOS Foundation has some very exciting announcements about future Family Meet-Ups. Click to read more...
A highlight of the day was the Family/MAB Panel Discussion. The three medical advisory board members: Dr. Wen-Hann Tann, Dr. Samantha Vergano, and Dr. Feng-Chun Yang sat on the panel. There were also three parents of kid’s with BOS: Tedra Tsesmilles, Lori Verlinghieri, and Rose Ross and a sibling, Anita Ross that also participated. There was an open Q & A session where attendees were able to ask questions and engage in the discussion.
The BOS Foundation hosted the first annual BOS Family Meet-Up in August 2016! Fourteen of the children and adults with BOS, their immediate family, and BOS medical advisors attended this casual event in Philadelphia, PA.