We are excited that information on how to join the BOS/CoRDS registry will be sent 3/1/2016. Joining the registry will include an initial questionnaire that should take only 10 – 15 minutes to complete. We are meeting with our Medical Advisors in the spring to develop a disease specific questionnaire that we will ask you to complete. In addition there will be annual updates where you will have the opportunity to provide the latest information to answer a variety of existing and emerging research questions. None of these questionnaires should take more than 20 minutes to complete. BOS Foundation will share with you results of the data collected on a regular basis. For questions or comments please contact the BOS Foundation.