Bohring-Opitz Syndrome Foundation, Inc.
"The Best Life for All Families Living with BOS"

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Miles for BOS

The Roll, Run, Swim & Walk-a-Thon has officially launched, and we're so excited to have you join us!

Throughout the month of August, every mile rolled, run, swam, or walked helps raise awareness and support the mission of the Bohring-Opitz Syndrome (BOS) Foundation. Whether you're participating on your own, with family, or as a team, every step and every donation makes a difference.

Now it's time to get moving! Track your activity, share your progress, encourage others to join, and help spread awareness for Bohring-Opitz Syndrome.

If you'd like to support the event with a donation, you can give here:

Donation Link: https://www.paypal.com/ncp/payment/HW3BHQAPRX4YA

Every dollar raised helps the BOS Foundation continue to:

  • Support families affected by Bohring-Opitz Syndrome

  • Provide educational resources and advocacy

  • Build a stronger, connected BOS community

  • Research into ASXL1 gene

Thank you for being part of this incredible event. We can't wait to see your miles, photos, and stories throughout August. Be sure to share your journey on social media and inspire others to get involved!

Together, we are making every mile count.

Miles for BOS

With gratitude,

The Bohring-Opitz Syndrome Foundation

Taylor GurganusComment