Fundraiser for Vinny Boy and BOS Foundation

Guest UserJuly 27, 2017Comment

Welcome to the Board!

Guest UserJuly 18, 2017Comment

Bohring-Opitz Syndrome Foundation: 2016 Year in Review

Bohring-Opitz Syndrome, Rare DiseaseGuest UserApril 11, 2017Bohring-Opitz Syndrome, Rare DiseaseComment

Bohring-Opitz Syndrome Highlighted at ACMG

Bohring-Opitz Syndrome, Rare DiseaseGuest UserApril 10, 2017Bohring-Opitz Syndrome, Medical Advisory Board, Rare DiseaseComment

Awareness Day Is April 6th: What Can I Do?

Rare Disease, Bohring-Opitz SyndromeGuest UserApril 4, 2017BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare DiseaseComment

Ultra-Rare Syndrome Celebrates Its Day in the Spotlight

Rare Disease, Bohring-Opitz SyndromeTaylor GurganusApril 3, 2017BOS, Bohring-Opitz Syndrome, Medical Advisory Board, BOS Clinical FeaturesComment

BOS Advocates Participate in Rare Disease Events

Bohring-Opitz Syndrome, Rare Disease, AdvocacyGuest UserApril 2, 2017BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare DiseaseComment

2017 BOS Coloring Page

Bohring-Opitz SyndromeTaylor GurganusMarch 30, 2017Raise AwarenessComment

BOS Foundation Medical Advisory Board Welcomes Dr. Yang and Dr. Pierson

Guest UserMarch 28, 2017Comment

Rare Disease Day 2017

Guest UserFebruary 28, 2017Comment

BOS Foundation Partners with RARE Science for Awareness Day

Bohring-Opitz Syndrome, Rare DiseaseGuest UserFebruary 16, 2017BOS, Bohring-Opitz Syndrome, Rare Disease, Raise AwarenessComment

We're Partnering with The Mighty!

Bohring-Opitz Syndrome, Rare DiseaseGuest UserFebruary 3, 2017BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare DiseaseComment

Child with BOS Featured in Beyond the Diagnosis Exhibit

Guest UserFebruary 2, 2017 Comment

Bohring-Opitz Syndrome Receives International Attention

Bohring-Opitz Syndrome, Rare DiseaseGuest UserJanuary 31, 2017BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare DiseaseComment

Position Opening - Director of Fundraising

Bohring-Opitz SyndromeTaylor GurganusJanuary 14, 2017BOS, Bohring-Opitz Syndrome Comment

BOS Awareness Day

Bohring-Opitz Syndrome Awareness Day takes place on April 6th each year. Taylor Gurganus, co-founder of the BOS Foundation, organized the first BOS Awareness Day on April 6, 2015. April 6th was selected for BOS Awareness Day because it is the anniversary of the formation of the first BOS Support Group on Facebook.

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