The BOS Foundation hosted the 2nd Annual BOS Family Meet-Up in Philadelphia on July 29th. Fourteen families were in attendance and all had a wonderful time of fellowship and networking with others in the BOS community. Click here to read more.
Bohring-Opitz Syndrome Awareness Day takes place on April 6th each year. Taylor Gurganus, co-founder of the BOS Foundation, organized the first BOS Awareness Day on April 6, 2015. April 6th was selected for BOS Awareness Day because it is the anniversary of the formation of the first BOS Support Group on Facebook.
Help support The BOS Foundation’s mission to spread awareness about Bohring-Opitz Syndrome among the medical community! For every $20 donation made before December 10, 2016, you will receive our BOS holiday ornament as a thank you for your contribution.
Starting January 2017, we will be sending birthday gifts to every child with BOS who is registered with us. This new method will allow everyone with BOS to receive a gift. If you want your child to be added to the birthday list please complete this form.