Become a Supporter
The BOS Foundation relies on the generosity of families, friends, and the community for support. No gift is too small. Your gift will help us work towards improving the quality of life for people affected by BOS. All donations are tax-deductible to the full extent of the law. Receipts will be emailed quarterly for donations made over the amount of $75. If you would like to request a receipt for an amount below $75 please email Danielle and email@example.com
Sign Up for Our Newsletters
We send quarterly newsletters to keep the public up-to-date on what is happening within the foundation. We would love to share those items with you. Please sign-up for our newsletters today.
Add The Bohring-Opitz Syndrome Foundation as your charitable organization when shopping online. Amazon Smile will donate a percentage to our foundation.
Join The BOS Registry
Patients and families (including angels) with BOS or mutations in ASXL genes are enrolled in our study which is approved by the hospital ethics committees.
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Like and Follow Us
Like and follow us on social media to stay on top of the latest Foundation news!
Participate in Rare Disease Day
The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
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Bohring-Opitz Syndrome Foundation
P.O. Box 560475
Orlando, FL 32856