Being a parent of a special needs child can be overwhelming.  We want to give parents the tools to be the best caretaker to their child and themselves. Our patient support committee will connect you with families who share your same experience and feelings. 

Jesa Galloway, Patient Support Committee Chair

jesa@bos-foundation.org



Receiving a diagnosis of BOS can be very difficult. We have found that the best source of information is other parents. The Parent Support Group is a great way to exchange information with other families. Another way to connect with families is to attend our annual BOS Meet-Up

The BOS Connection group was created for knowledge, collaboration, medical research, and public awareness of Bohring-Opitz Syndrome. This group shares various information about the BOS Foundation and how you can share your story and photos on our social media sites. 

The BOS Connection group was created for knowledge, collaboration, medical research, and public awareness of Bohring-Opitz Syndrome. This group shares various information about the BOS Foundation and how you can share your story and photos on our social media sites.