Bohring-Opitz Syndrome Foundation, Inc.
"The Best Life for All Families Living with BOS"

We have partnered with Rare Science to gift

Rare Bears

Our partnership with RARE Science launched this special gifting of RARE Bears to coincide with Awareness Day to help educate others about Bohring-Opitz Syndrome. RARE Science initiated the RARE Bear program in August of 2015.  It has since grown to include over 700 RARE Bear Makers from around the world (they span 9 countries and 45 states in the US) that make up the RARE Bear Army.  

In 2019, thirty BOS patients/families requested a Rare Bear. This program will be offered annually on April 6 to honor all BOS patients and angels. Each bear is carefully selected and matched with a child. Please check back in April 2020 to enroll in the RARE Bear Program and to request a RARE Bear.