Our partnership with RARE Science launched this special gifting of RARE Bears to coincide with Awareness Day to help educate others about Bohring-Opitz Syndrome. RARE Science initiated the RARE Bear program in August of 2015. It has since grown to include over 700 RARE Bear Makers from around the world (they span 9 countries and 45 states in the US) that make up the RARE Bear Army.
In 2019, thirty BOS patients/families requested a Rare Bear. This program will be offered annually on April 6 to honor all BOS patients and angels. Each bear is carefully selected and matched with a child. Please check back in April 2020 to enroll in the RARE Bear Program and to request a RARE Bear.