Become a Supporter
The BOS Foundation relies on the generosity of families, friends, and the community for support. No gift is too small. Your gift will help us work towards improving the quality of life for people affected by BOS. All donations are tax-deductible to the full extent of the law. Receipts will be emailed yearly for donations made in 2018.
Click the donate button below to pay via PayPal or mail a check payable to Bohring-Opitz Syndrome Foundation, Inc.
Our organization has no paid staff and all officers and board members volunteer their time. We are always looking for assistance in various area. If you are interested in volunteering please email email@example.com.
Request Awareness Products
Would you like to help spread awareness about BOS in your community?
Complete the form below to request BOS Awareness items! Awareness items are shipped monthly. If you would like to request a bulk order for an event please email firstname.lastname@example.org and we will do our best to meet your request.
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Join the BOS Registry
Patients and families (including angels) with BOS or mutations in ASXL genes are enrolled in our study which is approved by the hospital ethics committees. Parents complete simple questionnaires online about their child’s medical history and may submit photographs as well as test results and notes from their physicians. The information is kept on a secure server. Identified information can only be accessed by the researchers in charge of the study. Deidentified content may be available to other researchers, members of the registry advisory board, and the study participants.