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BOS Family Meet-Ups

The BOS Family Meet-Up, hosted every other year by the BOS Foundation, is a heartwarming and inclusive event designed to bring together families affected by BOS (Bohring-Opitz Syndrome) for a day of connection, support, and fun. Held just outside of Philadelphia, the gathering provides a welcoming space for families to bond, share experiences, and create lasting memories. It’s a chance for families from across the country and around the world to come together and form a tight-knit community.

For those who can’t attend in person, the BOS Foundation supports families outside of the US by offering International Mini Meetup Grants, encouraging global community-building by assisting with the organization of smaller meet-ups across the world.

Save the Dates

UK Family Meet-Up | August 2, 2025

For more information please email Anna Dogget at anna.doggett@hotmail.co.uk

US Family Meet-Up | July 2027

For more information on the 7th BOS Family Meet-Up please check back in January 2027

Featured

2025-The 6th BOS Family Meet-Up Brings Joy, Connection, and Community

On Saturday, July 26, 2025, families from across the globe gathered at The Inn at Villanova University in Radnor, PA for a truly unforgettable event — the 6th Bohring-Opitz Syndrome (BOS) Family Meet-Up! The BOS community came together for a day filled with love, laughter, and the kind of connection you can only find among those who truly understand.

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2023 5th BOS Family Meet-Up

The BOS Foundation hosted its 5th BOS Family Meet-Up on July 29, 2023. The event was held at the Cytophl-Montco, just outside of Philadelphia. In attendance, were 17 BOS families for a total of 73 people. A professional photographer was on hand to capture the festivities.

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2019 4th Annual BOS Family Meet-Up

The BOS Foundation hosted its 4th Annual BOS Family Meet-Up on July 27, 2019. The event was held at the Jeffersonville Country Club, just outside of Philadelphia. In attendance were 17 BOS families for a total of 97 people. This represented the largest attendance at a Meet-Up thus far.

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2019 BOS Family Meet-Up Back in PA

Families can mark their calendars now: The next BOS Foundation Family Meet-Up will be Saturday, July 27, 2019, near the beautiful city of Philadelphia. After much deliberation, the BOS Foundation has decided that the most effective and fair way to accommodate the greatest number of BOS families is to alternate locations---East and West Coast---each year.

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2018 3rd Annual BOS Family Meet-Up

On Saturday, July 28, 2018, the Bohring-Opitz Syndrome Foundation held its 3rd annual family meet-up at the UCLA Meyer & Renee Luskin Conference Center, in Westwood, Los Angeles. Each year’s meet-up provides a unique opportunity for BOS families to interact with, share experiences with, and learn from families much like their own. Parents find that their children not only look similar (like brothers and sisters!), but more importantly, have many of the same medical and behavioral issues.

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2017 2nd Annual BOS Family Meet-Up in Philadelphia

A highlight of the day was the Family/MAB Panel Discussion. The three medical advisory board members: Dr. Wen-Hann Tann, Dr. Samantha Vergano, and Dr. Feng-Chun Yang sat on the panel. There were also three parents of kid’s with BOS: Tedra Tsesmilles, Lori Verlinghieri, and Rose Ross and a sibling, Anita Ross that also participated. There was an open Q & A session where attendees were able to ask questions and engage in the discussion.

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2016 1st Annual BOS Meet-Up

The BOS Foundation hosted the first annual BOS Family Meet-Up in August 2016! Fourteen of the children and adults with BOS, their immediate family, and BOS medical advisors attended this casual event in Philadelphia, PA.

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