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"The Best Life for All Families Living with BOS"
Home
About
What is BOS
Medical & Research
Medical & Research
ARRE Foundation
Patient & Family Support
Patient & Family Support
Meet-Up
New to BOS
Financial Scholarships
Patients with BOS
Awareness Day
Resource Links
BOS Connection Group
Fundraisers
T-Shirt Fundraiser
Golf 4 BOS
Get Involved
Donate
Store
News
Contact
News
What’s New
News
Dec 21, 2024
BOS Child Loss Support
Dec 21, 2024
Dec 21, 2024
Nov 29, 2024
Giving Tuesday Campaign: Support Families Living with BOS
Nov 29, 2024
Nov 29, 2024
Oct 17, 2023
Exciting News... Scholarship Applications are now open!
Oct 17, 2023
Oct 17, 2023
Apr 21, 2023
3rd Annual Golf 4 BOS
Apr 21, 2023
Apr 21, 2023
Apr 21, 2023
ASXL Puberty Survey
Apr 21, 2023
Apr 21, 2023
Apr 19, 2023
Financial Scholarship Applications are now being accepted!
Apr 19, 2023
Apr 19, 2023
Apr 1, 2022
2022 BOS Financial Scholarship Application Open
Apr 1, 2022
Apr 1, 2022
May 14, 2021
Golf 4 BOS Fundraiser
May 14, 2021
May 14, 2021
Mar 1, 2021
BOS Financial Scholarships Now Available
Mar 1, 2021
Mar 1, 2021
Sep 20, 2020
BOS face masks are here AND BOS Patients get 1 FREE!
Sep 20, 2020
Sep 20, 2020
May 14, 2020
ASXL Registry Newsletter 2020
May 14, 2020
May 14, 2020
Apr 6, 2020
Rare Bears are BACK!
Apr 6, 2020
Apr 6, 2020
Feb 2, 2020
Annual T-Shirt Fundraiser
Feb 2, 2020
Feb 2, 2020
Feb 1, 2020
Coming soon…5th Annual Meet-Up
Feb 1, 2020
Feb 1, 2020
Jul 2, 2019
4th Annual BOS Family Meet-Up
Jul 2, 2019
Jul 2, 2019
Apr 5, 2019
Spreading Awareness of Bohring-Opitz Syndrome - Ultra-Rare Syndrome Celebrates Its Day in the Spotlight
Apr 5, 2019
Apr 5, 2019
Feb 22, 2019
BOS Foundation Funds ASXL1 Research
Feb 22, 2019
Feb 22, 2019
Feb 1, 2019
BOS Foundation Launches Financial Scholarship Program February 1, 2019
Feb 1, 2019
Feb 1, 2019
Nov 26, 2018
Monday Meet the Board- Lori Fulton
Nov 26, 2018
Nov 26, 2018
Nov 20, 2018
Yankee Candle & Ornament Fundraisers
Nov 20, 2018
Nov 20, 2018
Nov 19, 2018
Monday Meet the Board- Tony Nguyen
Nov 19, 2018
Nov 19, 2018
Nov 12, 2018
Monday Meet the Board- Taylor Gurganus
Nov 12, 2018
Nov 12, 2018
Nov 5, 2018
Monday Meet the Board- Anita Ross
Nov 5, 2018
Nov 5, 2018
Oct 27, 2018
2019 BOS Family Meet-Up Back in Philly
Oct 27, 2018
Oct 27, 2018
Aug 12, 2018
3rd Annual BOS Family Meet-Up
Aug 12, 2018
Aug 12, 2018
May 5, 2018
2018 BOS Meet-Up Travel Stipend Application
May 5, 2018
May 5, 2018
May 3, 2018
Discussing the Inheritance Pattern for Bohring-Opitz Syndrome
May 3, 2018
May 3, 2018
Apr 28, 2018
BOS Family Meet-Up 2018
Apr 28, 2018
Apr 28, 2018
Mar 17, 2018
Celebrate BOS Awareness Day in Your Community!
Mar 17, 2018
Mar 17, 2018
Oct 17, 2017
Family Finding Answers After 57 Year Search for a Diagnosis
Oct 17, 2017
Oct 17, 2017