"The Best Life for All Families Living with BOS"

BOS Meet-Up

BOS Family Meet-Ups

The BOS Family Meet-Up, hosted every other year by the BOS Foundation, is a heartwarming and inclusive event designed to bring together families affected by BOS (Bohring-Opitz Syndrome) for a day of connection, support, and fun. Held just outside of Philadelphia, the gathering provides a welcoming space for families to bond, share experiences, and create lasting memories. It’s a chance for families from across the country and around the world to come together and form a tight-knit community.

For those who can’t attend in person, the BOS Foundation supports families outside of the US by offering International Mini Meetup Grants, encouraging global community-building by assisting with the organization of smaller meet-ups across the world.


Save the Dates

UK Family Meet-Up | August 2, 2025

For more information please email Anna Dogget at anna.doggett@hotmail.co.uk

US Family Meet-Up | July 26, 2025

For more information on the 6th BOS Family Meet-Up click the link below.