Bohring-Opitz Syndrome Foundation, Inc.
"The Best Life for All Families Living with BOS"

News

What’s New

News
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Exciting News... Scholarship Applications are now open!
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3rd Annual Golf 4 BOS
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ASXL Puberty Survey
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Financial Scholarship Applications are now being accepted!
2022 BOS Financial Scholarship Application Open
2022 BOS Financial Scholarship Application Open
Golf 4 BOS Fundraiser
Golf 4 BOS Fundraiser
BOS Financial Scholarships Now Available
BOS Financial Scholarships Now Available
BOS face masks are here AND BOS Patients get 1 FREE!
BOS face masks are here AND BOS Patients get 1 FREE!
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ASXL Registry Newsletter 2020
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Rare Bears are BACK!
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Annual T-Shirt Fundraiser
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Coming soon…5th Annual Meet-Up
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4th Annual BOS Family Meet-Up
Spreading Awareness of Bohring-Opitz Syndrome - Ultra-Rare Syndrome Celebrates Its Day in the Spotlight
Spreading Awareness of Bohring-Opitz Syndrome - Ultra-Rare Syndrome Celebrates Its Day in the Spotlight
BOS Foundation Funds ASXL1 Research
BOS Foundation Funds ASXL1 Research
BOS Foundation Launches Financial Scholarship Program February 1, 2019
BOS Foundation Launches Financial Scholarship Program February 1, 2019
Monday Meet the Board- Lori Fulton
Monday Meet the Board- Lori Fulton
Yankee Candle & Ornament Fundraisers
Yankee Candle & Ornament Fundraisers
Monday Meet the Board- Tony Nguyen
Monday Meet the Board- Tony Nguyen
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Monday Meet the Board- Taylor Gurganus
Monday Meet the Board- Anita Ross
Monday Meet the Board- Anita Ross
2019 BOS Family Meet-Up Back in Philly
2019 BOS Family Meet-Up Back in Philly
3rd Annual BOS Family Meet-Up
3rd Annual BOS Family Meet-Up
2018 BOS Meet-Up Travel Stipend Application
2018 BOS Meet-Up Travel Stipend Application
Discussing the Inheritance Pattern for Bohring-Opitz Syndrome
Discussing the Inheritance Pattern for Bohring-Opitz Syndrome
BOS Family Meet-Up 2018
BOS Family Meet-Up 2018
Celebrate BOS Awareness Day in Your Community!
Celebrate BOS Awareness Day in Your Community!
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Family Finding Answers After 57 Year Search for a Diagnosis
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Announcing International Mini Meet-Up Grants
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BOS Foundation Board Member Attends Global Genes RARE Patient Advocacy Summit