Established in 2015 by Carrie Hunsucker and Taylor Gurganus, The Bohring-Opitz Syndrome Foundation, Inc.  is dedicated to significantly improving the lives of people with Bohring-Opitz syndrome through Research, Medical Care, Awareness and Advocacy. 

A diagnosis defines a lot of things, but it doesn’t define love.
— Lexi Behrndt

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Find out about our organization and goals for helping people who live with BOS

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