Bohring-Opitz Syndrome Foundation, Inc.
"The Best Life for All Families Living with BOS"


“The Best Life for All Families Living with BOS”


Dedicated to improving the quality of life for all families living with BOS since 2015.

Established in 2015 by Carrie Hunsucker and Taylor Gurganus, The Bohring-Opitz Syndrome Foundation, Inc.- a 501c3 non-profit organization- is dedicated to improving the lives of people affected by BOS through the establishment of a medical advisory board, awareness initiatives, and parent/patient advocacy. 



➤ Mail

1310 Egypt Road
P.O. BOX 832
Oaks, PA 19456