Established in 2015 by Carrie Hunsucker and Taylor Gurganus, The Bohring-Opitz Syndrome Foundation, Inc.  is dedicated to improving the lives of people affected by BOS through the establishment of a medical advisory board, awareness Initiatives, and parent/patient advocacy. 

A diagnosis defines a lot of things, but it doesn’t define love.
— Lexi Behrndt


Find out about our organization and goals for helping people who live with BOS

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Ready to take the next step? You can become a contributor to our cause, or participate yourself.

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