Welcome to the BOS community! With a new diagnosis comes some relief and many questions. The BOS Foundation is here to support you and your family as you manage all of the new information about this rare syndrome.

Olivia Breeden and Taylor Gurganus

Has your child recently been diagnosed with BOS? If so, please complete the form below so we can keep you up-to-date on all things related to BOS. All information on this page will be kept confidential.

For questions or concerns please email info@bos-foundation.org .

Child's Name

First Name

Last Name

Child's Date of Birth

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DD

YYYY

Is your child a BOS Angel?

Gender

How was your child diagnosed with BOS?

When was your child diagnosed with BOS?

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DD

YYYY

Does your child have a G or G/J tube?

Number of Siblings

Parent/ Guardian Name

First Name

Last Name

Parent/ Guardian Name

First Name

Last Name

Email Address

Mailing Address

Address 1

Address 2

City

State/Province

Zip/Postal Code

Country

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