Below are some videos that are related to Bohring-Opitz Syndrome. If you have a video to share please feel free to email it to taylor@bos-foundation.org.
A video to educate the public on Bohring-Opitz Syndrome.
www.cinecrowd.com/kuluut www.facebook.com/kuluutfilm
Are you #BOSAware? Join us on April 6, 2017 by supporting those with BOS and their families by posting your picture to social media. To learn more about Bohring-Opitz Syndrome visit www.bos-foundation.org
Talynn is a little girl living with a rare genetic syndrome called Bohring-Opitz. There are fewer than 60 cases in the world. April 6, 2016 is the awareness day for BOS and we need your help. Please share, like, and invite your friends to our social media sites, request your free awareness products at the link below, and wear BOS colors on April 6.
Hazel is one of 30 people in the world diagnosed with Bohring-Opitz syndrome. Watching us meet for the first time will make you question how you perceive humans with differences.
A video to educate the public about Bohring-Opitz Syndrome.
29 February 2016 marks the ninth international Rare Disease Day coordinated by EURORDIS. This year the theme is: PATIENT VOICE! Bohring-Opitz Syndrome (BOS) is a rare disease and we want to invite you to learn more about BOS. In February 2016 we presented 29 days, every day, one fact a day about Bohring-Opitz Syndrome.
This documentary is about a family with an extraordinary child with a rare syndrome. There are only about 40 children from all over the world known with this Bohring Opitz Syndrome. This film is about the happiness of the family, even when they experience some difficult times.
At the 2016 NORD Breakthrough Summit in Arlington, Virginia, we spoke with Jesa Galloway, Director of the BOS Foundation to find out what is Bohring-Opitz Syndrome.
Talynn is a spunky little three year old. She was born with Bohring-Opitz Syndrome. Although this rare genetic syndrome has many obstacles, Talynn continues to fight through them.
C Amazing Films and Subtiel proudly present the teaser of the documentary "Kuluut". This is a documentary about Coen and his family. Coen was diagnosed with the Bohring Opitz Syndrome in 2012. This film focuses mainly on the beautiful things in life and the happiness and strength this family has.
February 24, 2011 in Juneau, Alaska at the State Capitol Building