Bohring-Opitz Syndrome Foundation, Inc.
"The Best Life for All Families Living with BOS"

Get Involved

Get Involved

Become a Supporter

The BOS Foundation relies on the generosity of families, friends, and the community for support.  No gift is too small. Your gift will help us work towards improving the quality of life for people affected by BOS. All donations are tax-deductible to the full extent of the law. Receipts will be emailed quarterly for donations made over the amount of $75. If you would like to request a receipt for an amount below $75 please email Danielle and

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Request Awareness Products

Tell your friends and family about this rare genetic syndrome.  There's no better way to make an impact than to become an active advocate yourself. Request your Bohring- Opitz Syndrome cards and stickers today! 

Request Awareness Products →

Sign Up for Our Newsletters

We send quarterly newsletters to keep the public up-to-date on what is happening within the foundation. We would love to share those items with you. Please sign-up for our newsletters today. 

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Amazon Smile

Add The Bohring-Opitz Syndrome Foundation as your charitable organization when shopping online. Amazon Smile will donate a percentage to our foundation. 

Add Us on Amazon Smile → 

Join The BOS Registry

Patients and families (including angels) with BOS or mutations in ASXL genes are enrolled in our study which is approved by the hospital ethics committees.

Join the BOS Registry

Like and Follow Us

Like and follow us on social media to stay on top of the latest Foundation news!

Participate in Rare Disease Day 

The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

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Bohring-Opitz Syndrome Foundation

P.O. Box 560475

Orlando, FL 32856