"The Best Life for All Families Living with BOS"

Rare Disease Day

Rare Disease Day® takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.  It’s never too early to get involved! 

To find out more about Rare Disease Day please visit:

  • http://www.rarediseaseday.org/
  • http://rarediseaseday.us/about/