Bohring-Opitz Syndrome Foundation, Inc.
"The Best Life for All Families Living with BOS"


What’s Happening

We're Partnering with The Mighty!

We're thrilled to announce a new partnership with The Mighty, a story-based health community focused on improving the lives of people facing disease, disorder, mental illness, and disability.  This partnership will bring our resources in front of The Mighty’s wide-reaching readership.

More than half of Americans are facing serious health conditions or medical issues.  The Mighty publishes real stories about real people facing real challenges.  Rare disease has always been prevelant on their site with a Rare Disease section and Facebook page.

We will now have a home on The Mighty and appear on many stories on the site.

Here is an example of one of the stories you might find on The Mighty: What Does It Mean to Be 'Rare?  You Told Us.

The Foundation is looking forward to sharing our stories, knowledge and resources to educate others about Bohring-Opitz Syndrome.  One of the best ways to help do that is by sharing your story.  We would love to hear from you if you are interested.  The Mighty does accept previously published pieces so if you have a blog you can submit ones you’ve already written. 

If you have a story you’d like to submit or an idea you’d like to see covered, please contact Michelle Parke Doty at michelle@bos-foundation for more information.