Welcome to the Board!

We would like to officially welcome Tony Nguyen to the Bohring-Opitz Syndrome Foundation Board of Directors. Tony will be in charge of Fundraising for the Foundation.

He was born and raised in Southern California.  He has a B.S in Biological Sciences from the University of California, Irvine.  Tony is a dynamic business executive with extensive management experience in rapid-high growth companies in an ever-changing environment.  Little did he know that his aptitude with ever-changing environments in his work life would transfer into his personal life.  His daughter Jemma was diagnosed with Bohring-Optiz Syndrome shortly after her first birthday and it has been a roller coaster first year of life. 

After Jemma’s diagnosis, Tony and his wife made it their mission to spread BOS awareness amongst their family, friends, colleagues and community.  They understand the importance of BOS awareness and are grateful that Tony is on the Board for the Bohring-Optiz Syndrome Foundation in order to continue the mission on a grander scale.  He believes in the Foundation’s goals and objectives and is proud to be a part of it.  Tony looks forward to continue growing the BOS Foundation with his fellow board members as well as with BOS advocates from all around the world.

We are so glad to have Tony and his family as part of our BOS community and look forward to working with him to grow the Foundation.

If you are interested in fundraising opportunities for the BOS Foundation, please contact tony@bos-foundation.org.  If you would like to get more information about volunteering please contact info@bos-foundation.org.