Bohring-Opitz Syndrome Foundation, Inc.
"The Best Life for All Families Living with BOS"


What’s Happening

2019 BOS Family Meet-Up Back in Philly

2019 BOS Family Meet-Up in Philly!.png

Philadelphia To Be Site of 2019 Family Meet-Up

Families can mark their calendars now: The next BOS Foundation Family Meet-Up will be Saturday, July 27, 2019, near the beautiful city of Philadelphia.  After much deliberation, the BOS Foundation has decided that the most effective and fair way to accommodate the greatest number of BOS families is to alternate locations---East and West Coast---each year.  By doing so, families can become familiar with relevant resources such as hotels, restaurants, and other facilities. Additionally, the foundation can now provide an abundance of travel information and resources to make travel easier for our BOS families. Of course, Philadelphia, has a world renown Children's hospital near by in the event of an emergency.  Both the July, 2017 Meet-Up in Philadelphia and the July, 2018 Meet-up in Los Angeles were well-attended and successful. We can not wait to connect as a community once again!

Further information about the July 27, 2019 Family Meet-Up in Philadelphia will be coming soon. We are look forward to seeing our BOS families and their wonderful children!

Feel free to email Anita Ross at with any questions!

Blog written by Lori Fulton