Bohring-Opitz Syndrome Foundation, Inc.
"The Best Life for All Families Living with BOS"


What’s Happening

Monday Meet the Board- Lori Fulton

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We are grateful to have Lori serve on the BOS Foundation Board!

Lori resides in the suburbs of Boston and is the mother of two sons:  Chris (age 22) and Daniel (age 19). When Daniel was 1 ½ years old, he was diagnosed with a metabolic disease.  When he was 18, an astute geneticist guessed that the diagnosis was wrong and asked the family to submit to whole exome gene testing.  As a result, Daniel was re-diagnosed with Bohring-Opitz Syndrome as an 18-year old.

Lori received her bachelor’s degree in psychology from Duke University and her law degree with honors from University of Georgia.  She also received a master’s degree in educational psychology from Loyola University Chicago. Lori is a member of both the Illinois and Massachusetts Bars. After working as a business lawyer in Chicago, Lori left to care for her children full time.   

Lori is grateful to have finally found the right “home” for her family in the BOS community.  Through her work with the BOS Foundation, she seeks to provide support to other BOS families.