Bohring-Opitz Syndrome Foundation, Inc.
"The Best Life for All Families Living with BOS"


What’s Happening

BOS Family Meet-Up 2018

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The BOS Foundation is excited to host the third annual BOS Family Meet-Up. This event will celebrate our BOS children and angels and their immediate families! This opportunity allows families living with this extremely rare syndrome to meet for the first time! This casual meet-up will provide a safe place for the exchange of information and ideas for the best care of children and adults with BOS.

UCLA will be offering hotel discounted rates and The BOS Foundation will be offering travel stipends. We will have more information and details within the coming weeks. The ARRE Foundation will have a medical/ research day on July 27 (contact Laura Badmaev for details). 

Please email to confirm RSVP.

Taylor GurganusComment