2017 2nd Annual BOS Family Meet-Up in Philadelphia

A highlight of the day was the Family/MAB Panel Discussion. The three medical advisory board members: Dr. Wen-Hann Tann, Dr. Samantha Vergano, and Dr. Feng-Chun Yang sat on the panel. There were also three parents of kid’s with BOS: Tedra Tsesmilles, Lori Verlinghieri, and Rose Ross and a sibling, Anita Ross that also participated. There was an open Q & A session where attendees were able to ask questions and engage in the discussion.

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2016 1st Annual BOS Meet-Up

The BOS Foundation hosted the first annual BOS Family Meet-Up in August 2016! Fourteen of the children and adults with BOS, their immediate family, and BOS medical advisors attended this casual event in Philadelphia, PA. 
 

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Taylor GurganusComment