Bohring-Opitz Syndrome Foundation, Inc.
"The Best Life for All Families Living with BOS"

Annual Meet-Up

Posts tagged BOS Family Meet-Up
2019 BOS Family Meet-Up Back in PA

Families can mark their calendars now: The next BOS Foundation Family Meet-Up will be Saturday, July 27, 2019, near the beautiful city of Philadelphia.  After much deliberation, the BOS Foundation has decided that the most effective and fair way to accommodate the greatest number of BOS families is to alternate locations---East and West Coast---each year.

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2017 2nd Annual BOS Family Meet-Up in Philadelphia

A highlight of the day was the Family/MAB Panel Discussion. The three medical advisory board members: Dr. Wen-Hann Tann, Dr. Samantha Vergano, and Dr. Feng-Chun Yang sat on the panel. There were also three parents of kid’s with BOS: Tedra Tsesmilles, Lori Verlinghieri, and Rose Ross and a sibling, Anita Ross that also participated. There was an open Q & A session where attendees were able to ask questions and engage in the discussion.

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