Bohring-Opitz Syndrome Foundation, Inc.
"The Best Life for All Families Living with BOS"

Annual Meet-Up

Posts tagged Bohring-Opitz Syndrome
2017 2nd Annual BOS Family Meet-Up in Philadelphia

A highlight of the day was the Family/MAB Panel Discussion. The three medical advisory board members: Dr. Wen-Hann Tann, Dr. Samantha Vergano, and Dr. Feng-Chun Yang sat on the panel. There were also three parents of kid’s with BOS: Tedra Tsesmilles, Lori Verlinghieri, and Rose Ross and a sibling, Anita Ross that also participated. There was an open Q & A session where attendees were able to ask questions and engage in the discussion.

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