Awareness Initiatives

On BOS Awareness Day 2021, our family and friends who supported us proudly wore their BTS4Sisi t-shirts and help spread awareness about BOS on social media which generated a lot of interests/requests to order more t-shirts. We communicated that all proceeds from this batch will be donated to BOS Foundation.

With BOS Awareness Day falling on a Saturday this year, we decided to celebrate with a "Meet Hazel" event at Grandma's house. We sent out Facebook invitations, handed out flyers to friends and neighbors, and invited by word of mouth.

This meeting was for me to introduce London to Justin and tell him our story. He is now BOS aware. I am so passionate about spreading awareness because people cannot be compassionate, become involved,  or work on a solution to a problem they do not know even exists.

I have recently created a group of new work representing the new now. Another big challenge is in front of us. Her scoliosis is growing to the degree where I need to decide if it should be fused. The doctors actually leave that up to me, her parent. What will be her quality of life? What will it be with or without it? That decision is overwhelming me. It has become the impetus of these four works.

We realize a lot of BOS families do not have help so we wanted to raise funds to support them. Our first fundraiser,  Blocks for BOS, came about because at the time there had been 150 kids diagnosed with BOS. . We wanted to honor all 150 children and we walked 150 blocks and pushed Mia in her wheelchair.