Bohring-Opitz Syndrome Foundation, Inc.
"The Best Life for All Families Living with BOS"

Awareness Initiatives

Raising awareness, one person at a time!

Meet Hazel Event

With BOS Awareness Day falling on a Saturday this year, we decided to celebrate with a "Meet Hazel" event at Grandma's house. We sent out Facebook invitations, handed out flyers to friends and neighbors, and invited by word of mouth.

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Taylor GurganusComment
London Meets the Prime Minster

This meeting was for me to introduce London to Justin and tell him our story. He is now BOS aware. I am so passionate about spreading awareness because people cannot be compassionate, become involved,  or work on a solution to a problem they do not know even exists.

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Taylor GurganusComment
Beautiful Artwork Influenced by BOS

I have recently created a group of new work representing the new now. Another big challenge is in front of us. Her scoliosis is growing to the degree where I need to decide if it should be fused. The doctors actually leave that up to me, her parent. What will be her quality of life? What will it be with or without it? That decision is overwhelming me. It has become the impetus of these four works.

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Taylor GurganusComment
Over $15,000 Raised!

We realize a lot of BOS families do not have help so we wanted to raise funds to support them. Our first fundraiser,  Blocks for BOS, came about because at the time there had been 150 kids diagnosed with BOS. . We wanted to honor all 150 children and we walked 150 blocks and pushed Mia in her wheelchair. 

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Taylor GurganusComment