Bohring-Opitz Syndrome Foundation, Inc.
"The Best Life for All Families Living with BOS"


What’s Happening

2015 is coming to an end...

It’s the end of 2015, so you know what that means?  Last chance for those tax deductions! We accomplished so much in 2015 and have big plans for 2016. Thanks to the generous support of our donors, we were able to become a 501(c)3 organization, create and distribute BOS awareness items to BOS families, and set up the infrastructure to offer encouragement to new BOS families starting in January.

We have huge plans in 2016, including the development of BOS research initiatives, the start of an official BOS patient registry, and making even further gains in spreading awareness among medical professionals and the general public.

Help us turn our goals into a reality! Donate now and help increase the knowledge about BOS to help improve the lives of many in our community!

Feel free to email us at with any questions or suggestions.

Thanks again for making 2015 such a great year!