Bohring-Opitz Syndrome Foundation, Inc.

BOS Patient Stories

Bohring-Opitz Syndrome Patient Support

Below are some stories from BOS families.  Sharing stories really help the BOS community raise awareness. 

Would you like your child's story to be heard?

If so, please email for more information. 

Be sure to also check out the first ever BOS Photo Book! This book was created to give patient families an idea of what it is like for other's living with the same syndrome.