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Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome Foundation: 2016 Year in Review
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Medical Advisory Board, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Medical Advisory Board, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome Highlighted at ACMG
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Medical Advisory Board, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Medical Advisory Board, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Medical Advisory Board, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Medical Advisory Board, Rare Disease Michelle Doty Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Awareness Day Is April 6th: What Can I Do?
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Ultra-Rare Syndrome Celebrates Its Day in the Spotlight
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Medical Advisory Board, BOS Clinical Features Taylor Gurganus Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Medical Advisory Board, BOS Clinical Features Taylor Gurganus Comment
Ultra-Rare Syndrome Celebrates Its Day in the Spotlight
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Medical Advisory Board, BOS Clinical Features Taylor Gurganus Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Medical Advisory Board, BOS Clinical Features Taylor Gurganus Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Medical Advisory Board, BOS Clinical Features Taylor Gurganus Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Medical Advisory Board, BOS Clinical Features Taylor Gurganus Comment
Bohring-Opitz Syndrome, Rare Disease, Advocacy BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease, Advocacy BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
BOS Advocates Participate in Rare Disease Events
Bohring-Opitz Syndrome, Rare Disease, Advocacy BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease, Advocacy BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease, Advocacy BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease, Advocacy BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome Raise Awareness Taylor Gurganus Comment
Bohring-Opitz Syndrome Raise Awareness Taylor Gurganus Comment
2017 BOS Coloring Page
Bohring-Opitz Syndrome Raise Awareness Taylor Gurganus Comment
Bohring-Opitz Syndrome Raise Awareness Taylor Gurganus Comment
Bohring-Opitz Syndrome Raise Awareness Taylor Gurganus Comment
Bohring-Opitz Syndrome Raise Awareness Taylor Gurganus Comment
Michelle Doty Comment
Michelle Doty Comment
BOS Foundation Medical Advisory Board Welcomes Dr. Yang and Dr. Pierson
Michelle Doty Comment
Michelle Doty Comment
Michelle Doty Comment
Michelle Doty Comment
Michelle Doty Comment
Michelle Doty Comment
Rare Disease Day 2017
Michelle Doty Comment
Michelle Doty Comment
Michelle Doty Comment
Michelle Doty Comment
BOS Foundation Partners with RARE Science for Awareness Day
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Rare Disease, Raise Awareness Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Rare Disease, Raise Awareness Michelle Doty Comment
BOS Foundation Partners with RARE Science for Awareness Day
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Rare Disease, Raise Awareness Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Rare Disease, Raise Awareness Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Rare Disease, Raise Awareness Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Rare Disease, Raise Awareness Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
We're Partnering with The Mighty!
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Michelle Doty 1 Comment
Michelle Doty 1 Comment
Child with BOS Featured in Beyond the Diagnosis Exhibit
Michelle Doty 1 Comment
Michelle Doty 1 Comment
Michelle Doty 1 Comment
Michelle Doty 1 Comment
Bohring-Opitz Syndrome Receives International Attention
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome Receives International Attention
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Position Opening - Director of Fundraising
Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome Taylor Gurganus Comment
Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome Taylor Gurganus Comment
Position Opening - Director of Fundraising
Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome Taylor Gurganus Comment
Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome Taylor Gurganus Comment
Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome Taylor Gurganus Comment
Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome Taylor Gurganus Comment
BOS Awareness Day
Taylor Gurganus Comment
Taylor Gurganus Comment
BOS Awareness Day
Taylor Gurganus Comment
Taylor Gurganus Comment

Bohring-Opitz Syndrome Awareness Day takes place on April 6th each year.  Taylor Gurganus, co-founder of the BOS Foundation, organized the first BOS Awareness Day on April 6, 2015.  April 6th was selected for BOS Awareness Day because it is the anniversary of the formation of the first BOS Support Group on Facebook. 

Taylor Gurganus Comment
Taylor Gurganus Comment
The Hunsuckers met mice with BOS!
Taylor Gurganus Comment
Taylor Gurganus Comment
The Hunsuckers met mice with BOS!
Taylor Gurganus Comment
Taylor Gurganus Comment
Taylor Gurganus Comment
Taylor Gurganus Comment
BOS Holiday Ornament
Taylor Gurganus Comment
Taylor Gurganus Comment
BOS Holiday Ornament
Taylor Gurganus Comment
Taylor Gurganus Comment

Help support The BOS Foundation’s mission to spread awareness about Bohring-Opitz Syndrome among the medical community! For every $20 donation made before December 10, 2016, you will receive our BOS holiday ornament as a thank you for your contribution.  

Taylor Gurganus Comment
Taylor Gurganus Comment
Join Our Birthday Club
Taylor Gurganus Comment
Taylor Gurganus Comment
Join Our Birthday Club
Taylor Gurganus Comment
Taylor Gurganus Comment

Starting January 2017, we will be sending birthday gifts to every child with BOS who is registered with us. This new method will allow everyone with BOS to receive a gift. If you want your child to be added to the birthday list please complete this form.

Taylor Gurganus Comment
Taylor Gurganus Comment
Ask the BOS Experts
Taylor Gurganus 1 Comment
Taylor Gurganus 1 Comment
Ask the BOS Experts
Taylor Gurganus 1 Comment
Taylor Gurganus 1 Comment
Taylor Gurganus 1 Comment
Taylor Gurganus 1 Comment
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Taylor Gurganus Comment
Amazon Smile
Taylor Gurganus Comment
Taylor Gurganus Comment
Taylor Gurganus Comment
Taylor Gurganus Comment
Introducing the latest three members of our Medical Advisory Board!
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Introducing the latest three members of our Medical Advisory Board!
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Why should you raise awareness?
Taylor Gurganus 1 Comment
Taylor Gurganus 1 Comment
Why should you raise awareness?
Taylor Gurganus 1 Comment
Taylor Gurganus 1 Comment
Taylor Gurganus 1 Comment
Taylor Gurganus 1 Comment
BOS Coloring Page
Taylor Gurganus Comment
Taylor Gurganus Comment
BOS Coloring Page
Taylor Gurganus Comment
Taylor Gurganus Comment
Taylor Gurganus Comment
Taylor Gurganus Comment
We need YOU!
Taylor Gurganus Comment
Taylor Gurganus Comment
We need YOU!
Taylor Gurganus Comment
Taylor Gurganus Comment
Taylor Gurganus Comment
Taylor Gurganus Comment
BOS/CoRDS patient registry is HERE!
Taylor Gurganus 1 Comment
Taylor Gurganus 1 Comment
BOS/CoRDS patient registry is HERE!
Taylor Gurganus 1 Comment
Taylor Gurganus 1 Comment
Taylor Gurganus 1 Comment
Taylor Gurganus 1 Comment
Patient registry available tomorrow!
Taylor Gurganus Comment
Taylor Gurganus Comment
Patient registry available tomorrow!
Taylor Gurganus Comment
Taylor Gurganus Comment
Taylor Gurganus Comment
Taylor Gurganus Comment
Patient Registry March 1!
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Taylor Gurganus Comment
Patient Registry March 1!
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Taylor Gurganus Comment
Taylor Gurganus Comment
Taylor Gurganus Comment
BOS Patient Registry
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Taylor Gurganus Comment
BOS Patient Registry
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Taylor Gurganus Comment
Taylor Gurganus Comment
Taylor Gurganus Comment
Patient registry coming soon!
Taylor Gurganus Comment
Taylor Gurganus Comment
Patient registry coming soon!
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Taylor Gurganus Comment
Teaming up with Sanford CoRDS
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Taylor Gurganus Comment
Taylor Gurganus Comment
Taylor Gurganus Comment
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Welcome Dr. Young!
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment