For Immediate Release
Spreading Awareness of Bohring-Opitz Syndrome
Ultra-Rare Syndrome Celebrates Its Day in the Spotlight
This year marks the fifth annual Bohring-Opitz Syndrome (BOS) Awareness Day. On April 6th, people from around the world will shine the spotlight on this rare disorder by wearing denim and gold, and engaging in other awareness events and activities.
Join us for the third annual Bohring-Opitz Syndrome Family Meet-Up!
The BOS Foundation hosted the 2nd Annual BOS Family Meet-Up in Philadelphia on July 29th. Fourteen families were in attendance and all had a wonderful time of fellowship and networking with others in the BOS community. Click here to read more.