Featured
Celebrate BOS Awareness Day in Your Community!
Celebrate BOS Awareness Day in Your Community!
Family Finding Answers After 57 Year Search for a Diagnosis
Announcing International Mini Meet-Up Grants
BOS Foundation Board Member Attends Global Genes RARE Patient Advocacy Summit
Information About Our Birthday Club
BOS Family Meet-Up Announcements
BOS Family Meet-Up Announcements

The BOS Foundation has some very exciting announcements about future Family Meet-Ups. Click to read more...

2nd Annual BOS Family Meet-Up in Philadelphia
2nd Annual BOS Family Meet-Up in Philadelphia

The BOS Foundation hosted the 2nd Annual BOS Family Meet-Up in Philadelphia on July 29th. Fourteen families were in attendance and all had a wonderful time of fellowship and networking with others in the BOS community. Click here to read more.

BOS & ASXL Related Disorders Registry
BOS & ASXL Related Disorders Registry
We Are #BOS Aware: Jill and Vaughan
Spotlight on BOS Foundation Co-Founder, Taylor Gurganus
Trinity Lutheran School in Orlando Raises Money for Bohring-Opitz Syndrome
Fundraiser for Vinny Boy and BOS Foundation
Welcome to the Board!
Bohring-Opitz Syndrome Foundation: 2016 Year in Review
Bohring-Opitz Syndrome Highlighted at ACMG
Awareness Day Is April 6th: What Can I Do?
Ultra-Rare Syndrome Celebrates Its Day in the Spotlight
Ultra-Rare Syndrome Celebrates Its Day in the Spotlight
BOS Advocates Participate in Rare Disease Events
2017 BOS Coloring Page
BOS Foundation Medical Advisory Board Welcomes Dr. Yang and Dr. Pierson
Rare Disease Day 2017
BOS Foundation Partners with RARE Science for Awareness Day
BOS Foundation Partners with RARE Science for Awareness Day
We're Partnering with The Mighty!
Child with BOS Featured in Beyond the Diagnosis Exhibit
Bohring-Opitz Syndrome Receives International Attention
Bohring-Opitz Syndrome Receives International Attention
Position Opening - Director of Fundraising
Position Opening - Director of Fundraising
BOS Awareness Day
BOS Awareness Day

Bohring-Opitz Syndrome Awareness Day takes place on April 6th each year.  Taylor Gurganus, co-founder of the BOS Foundation, organized the first BOS Awareness Day on April 6, 2015.  April 6th was selected for BOS Awareness Day because it is the anniversary of the formation of the first BOS Support Group on Facebook. 

The Hunsuckers met mice with BOS!
The Hunsuckers met mice with BOS!
BOS Holiday Ornament
BOS Holiday Ornament

Help support The BOS Foundation’s mission to spread awareness about Bohring-Opitz Syndrome among the medical community! For every $20 donation made before December 10, 2016, you will receive our BOS holiday ornament as a thank you for your contribution.  

Join Our Birthday Club
Join Our Birthday Club

Starting January 2017, we will be sending birthday gifts to every child with BOS who is registered with us. This new method will allow everyone with BOS to receive a gift. If you want your child to be added to the birthday list please complete this form.