Featured
2nd Annual BOS Family Meet-Up in Philadelphia
Bohring-Opitz Syndrome, BOS, BOS Family Meet-Up, Patient Support Michelle Doty Comment
Bohring-Opitz Syndrome, BOS, BOS Family Meet-Up, Patient Support Michelle Doty Comment
2nd Annual BOS Family Meet-Up in Philadelphia
Bohring-Opitz Syndrome, BOS, BOS Family Meet-Up, Patient Support Michelle Doty Comment
Bohring-Opitz Syndrome, BOS, BOS Family Meet-Up, Patient Support Michelle Doty Comment

The BOS Foundation hosted the 2nd Annual BOS Family Meet-Up in Philadelphia on July 29th. Fourteen families were in attendance and all had a wonderful time of fellowship and networking with others in the BOS community. Click here to read more.

Bohring-Opitz Syndrome, BOS, BOS Family Meet-Up, Patient Support Michelle Doty Comment
Bohring-Opitz Syndrome, BOS, BOS Family Meet-Up, Patient Support Michelle Doty Comment
BOS & ASXL Related Disorders Registry
BOS, Patient Registry, Medical Advisory Board Michelle Doty Comment
BOS, Patient Registry, Medical Advisory Board Michelle Doty Comment
BOS & ASXL Related Disorders Registry
BOS, Patient Registry, Medical Advisory Board Michelle Doty Comment
BOS, Patient Registry, Medical Advisory Board Michelle Doty Comment
BOS, Patient Registry, Medical Advisory Board Michelle Doty Comment
BOS, Patient Registry, Medical Advisory Board Michelle Doty Comment
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We Are #BOS Aware: Jill and Vaughan
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Bohring-Opitz Syndrome Michelle Doty Comment
Bohring-Opitz Syndrome Michelle Doty Comment
Spotlight on BOS Foundation Co-Founder, Taylor Gurganus
Bohring-Opitz Syndrome Michelle Doty Comment
Bohring-Opitz Syndrome Michelle Doty Comment
Bohring-Opitz Syndrome Michelle Doty Comment
Bohring-Opitz Syndrome Michelle Doty Comment
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Trinity Lutheran School in Orlando Raises Money for Bohring-Opitz Syndrome
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Fundraiser for Vinny Boy and BOS Foundation
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Welcome to the Board!
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Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome Foundation: 2016 Year in Review
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Medical Advisory Board, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Medical Advisory Board, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome Highlighted at ACMG
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Medical Advisory Board, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Medical Advisory Board, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Medical Advisory Board, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease Bohring-Opitz Syndrome, Medical Advisory Board, Rare Disease Michelle Doty Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Awareness Day Is April 6th: What Can I Do?
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Ultra-Rare Syndrome Celebrates Its Day in the Spotlight
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Medical Advisory Board, BOS Clinical Features Taylor Gurganus Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Medical Advisory Board, BOS Clinical Features Taylor Gurganus Comment
Ultra-Rare Syndrome Celebrates Its Day in the Spotlight
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Medical Advisory Board, BOS Clinical Features Taylor Gurganus Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Medical Advisory Board, BOS Clinical Features Taylor Gurganus Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Medical Advisory Board, BOS Clinical Features Taylor Gurganus Comment
Rare Disease, Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome, Medical Advisory Board, BOS Clinical Features Taylor Gurganus Comment
Bohring-Opitz Syndrome, Rare Disease, Advocacy BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease, Advocacy BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
BOS Advocates Participate in Rare Disease Events
Bohring-Opitz Syndrome, Rare Disease, Advocacy BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease, Advocacy BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease, Advocacy BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease, Advocacy BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome Raise Awareness Taylor Gurganus Comment
Bohring-Opitz Syndrome Raise Awareness Taylor Gurganus Comment
2017 BOS Coloring Page
Bohring-Opitz Syndrome Raise Awareness Taylor Gurganus Comment
Bohring-Opitz Syndrome Raise Awareness Taylor Gurganus Comment
Bohring-Opitz Syndrome Raise Awareness Taylor Gurganus Comment
Bohring-Opitz Syndrome Raise Awareness Taylor Gurganus Comment
Michelle Doty Comment
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BOS Foundation Medical Advisory Board Welcomes Dr. Yang and Dr. Pierson
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Rare Disease Day 2017
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BOS Foundation Partners with RARE Science for Awareness Day
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Rare Disease, Raise Awareness Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Rare Disease, Raise Awareness Michelle Doty Comment
BOS Foundation Partners with RARE Science for Awareness Day
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Rare Disease, Raise Awareness Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Rare Disease, Raise Awareness Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Rare Disease, Raise Awareness Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Rare Disease, Raise Awareness Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
We're Partnering with The Mighty!
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
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Child with BOS Featured in Beyond the Diagnosis Exhibit
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Bohring-Opitz Syndrome Receives International Attention
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome Receives International Attention
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Bohring-Opitz Syndrome, Rare Disease BOS, Bohring-Opitz Syndrome, Raise Awareness, Rare Disease Michelle Doty Comment
Position Opening - Director of Fundraising
Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome Taylor Gurganus Comment
Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome Taylor Gurganus Comment
Position Opening - Director of Fundraising
Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome Taylor Gurganus Comment
Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome Taylor Gurganus Comment
Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome Taylor Gurganus Comment
Bohring-Opitz Syndrome BOS, Bohring-Opitz Syndrome Taylor Gurganus Comment
BOS Awareness Day
Taylor Gurganus Comment
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BOS Awareness Day
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Taylor Gurganus Comment

Bohring-Opitz Syndrome Awareness Day takes place on April 6th each year.  Taylor Gurganus, co-founder of the BOS Foundation, organized the first BOS Awareness Day on April 6, 2015.  April 6th was selected for BOS Awareness Day because it is the anniversary of the formation of the first BOS Support Group on Facebook. 

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The Hunsuckers met mice with BOS!
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The Hunsuckers met mice with BOS!
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BOS Holiday Ornament
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BOS Holiday Ornament
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Help support The BOS Foundation’s mission to spread awareness about Bohring-Opitz Syndrome among the medical community! For every $20 donation made before December 10, 2016, you will receive our BOS holiday ornament as a thank you for your contribution.  

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Join Our Birthday Club
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Join Our Birthday Club
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Starting January 2017, we will be sending birthday gifts to every child with BOS who is registered with us. This new method will allow everyone with BOS to receive a gift. If you want your child to be added to the birthday list please complete this form.

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Ask the BOS Experts
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Ask the BOS Experts
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Amazon Smile
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Introducing the latest three members of our Medical Advisory Board!
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Introducing the latest three members of our Medical Advisory Board!
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Bohring-Opitz Syndrome, Medical Advisory Board Taylor Gurganus Comment
Why should you raise awareness?
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Why should you raise awareness?
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BOS Coloring Page
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BOS Coloring Page
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We need YOU!
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We need YOU!
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